Tuesday, October 7, 2008

Our meeting with the Neurosurgeon

We met with our neurosurgeon (NS) this afternoon. Um, not sure where I should start. We don't have a surgery date yet, but he did say that it will be in about a month, give or take a week. We will be meeting with the plastic surgeon (PS) probably on Friday - our appt with the NS went late & the PS's office was closed by the time we were done. They'll call us with our appointment time tomorrow. After meeting with the PS we will go back to the NS to schedule the surgery & start getting things in order. Ryan, Ember & I will all go get our blood tested and if one of us is a match to her we will give our blood so she won't have to get a stranger's blood during the surgery. They'll help us get stuff figured out with our insurance. Our insurance considers this surgical team to be out-of-network, but because there are only 130 doctors in the country that can do this kind of surgery they will be able to work it out so that our insurance will cover it. Anyway, about the surgery itself - it's going to be a lot worse than I thought. I was under the impression that they would only be cutting the skull bones apart at the suture - sort of creating a new suture. I was wrong. The NS be making an incision from above one ear, up to the top of her head, and back down to the other ear. Then he will cut the bone along that same line and remove the front part of her skull completely (her whole forehead). The PS will take that part of her skull & work on it to make it the right shape, then the NS will screw it back on. That's really difficult information to deal with, I really didn't think it was going to be such a major surgery. Anyway, that's all the new information I can think of right now.

2 comments:

laura davis said...

i am praying for all of you...

ritaindy said...

Heather,

I do not know you, but went to school with your dad...I pray that You and your family will know the healing power of God, and that he is the ultimate healer. I also pray that the Dr's will take wonderful care of little Ember.

Blessing
Rita Powers Pierce